16 |
17 | Would you like to help our research?
18 | 19 |Tap "JOIN THE STUDY" to learn about this research study run by OHSU and Sage 20 | Bionetworks or tap 21 | "JOIN LATER" to begin mapping
22 | 23 |
16 |
17 | Tap "JOIN THE STUDY" to learn about this research study run by OHSU and Sage 20 | Bionetworks or tap 21 | "JOIN LATER" to begin mapping
22 | 23 |
19 | We will ask you questions, such as your profession, zip code where you live,
20 | hair/skin color and your prior experience with melanoma. These questions will be
21 | used to evaluate your exposure to UV radiation and your melanoma risk. Each month we
22 | will also ask you questions about your sun exposure, your health and whether you had
23 | moles removed.
24 |
25 | You can skip any questions you do not wish to answer.
26 |
20 | We will use strict information technology procedures to safeguard your data and
21 | prevent improper access.
22 |
23 | Your data will be stored by our vendor Sage Bionetworks and OHSU on separate secure
24 | Cloud servers in a manner that keeps your information as safe as possible and
25 | prevents unauthorized people from getting to your data.
26 |
27 | Your coded study data may be shared with researchers in other countries, including
28 | countries that may have different data protection laws than your country of
29 | residence.
30 |
19 | This study will NOT provide you with information related to your specific health or
20 | melanoma risks.
21 |
22 | This is NOT a medical diagnostic tool and isn’t designed to provide medical advice,
23 | professional diagnosis, opinion, treatment or healthcare services.
24 |
25 | You should not use the information provided in Mole Mapper or the study
26 | documentation in place of a consultation with your physician or health care
27 | provider.
28 |
29 | If you have any questions or concerns related to your health, you should seek the
30 | advice of a medical professional.
31 |
20 | This project could create the largest dataset of longitudinal tracking of moles and
21 | may provide insights into the progression of moles to melanoma.
22 |
23 | You may or may not personally benefit from this study. However, using the Mole
24 | Mapper app may help you monitor your moles over time. You will be able to share your
25 | mole photos and measurements as you wish, with your medical doctor and anyone you
26 | choose. You will also receive alerts about future melanoma educational and community
27 | events, free skin cancer screenings and/or skin cancer research opportunities from
28 | the War on Melanoma™ Community Registry.
29 |
19 | You may decide not to participate in the study or you may leave the study and/or the
20 | War on Melanoma™ Community Registry at any time.
21 |
22 | You can continue using the Mole Mapper app after you leave the study.
23 |
24 | If you withdraw from the study, we will stop collecting new data. The coded study
25 | data collected prior to withdrawing may still be used in the study, it will not be
26 | destroyed or deleted.
27 |
28 | The study team may also withdraw you from the study at any time for any reason.
29 |
30 | To withdraw from the Mole Mapper study and the War on Melanoma™ Community Registry,
31 | please use the ‘Leave Study’ button on the Profile page of the Mole Mapper app.
32 |
18 | To join this study, we will ask you to do: 19 | 20 |
20 | If you join this research study we will ask you to share your mole measurements 21 | collected using Mole Mapper. You will: 22 |
31 | We will prompt you to re-measure your moles each month and send your updated data
32 | along with any information about new moles and whether you had any moles removed. If
33 | you have had a mole removed in a given month, we will ask you to take a photo and
34 | measurement of the biopsy site.
35 |
36 | You can track your moles at your convenience, track more or fewer moles or stop
37 | sharing your mole measurements at any time.
38 |
27 | Check out the National Cancer Institute’s guide to moles. 28 |
29 | 30 |31 | SEE THE GUIDE 32 |
33 | 34 |39 | This app is designed for self-tracking to help 40 | you monitor the size, shape, and color of your 41 | moles. This app does not make any claim to 42 | detect, diagnose, or treat any skin condition. 43 | 44 | Any data stored within the app is for personal 45 | use only. We encourage you to share your 46 | photos and measurements with a licensed 47 | professional and refer to their professional 48 | opinion. 49 |
50 | 51 |27 | touchlab 28 | America's Android First Development & Design Shop 29 | Thank you to Wojciech Dziemianczyk & Brad McDermott for your great work on development, 30 | Liam Spradlin for his wonderful design, and Justin Mancinelli for project managing. 31 |
32 | 33 |34 | Design elements from David Reese, Steve Salgado, and Chris Webster. 35 |
36 | 37 |40 | Dan Webster 41 | NCI Postdoc 42 | Founder and Lead Developer of MoleMapper.org 44 |
45 | 46 |47 | Ron West 48 | Developer 49 |
50 | 51 |52 | Tracy Petrie 53 | Product Manager 54 |
55 | 56 |57 | Michael Carroll 58 | Technologist-in-Residence at Cornell Tech 59 |
60 | 61 |
19 | We take great care to protect your information, however there is a slight risk of
20 | loss of privacy. This risk is low because we separate your account information
21 | (name, email, contact information, etc.) from the study data. Only key members of
22 | the study team and some IT staff will have the key to associate your coded study
23 | data to your name and account information.
24 |
25 | However, certain skin features like tattoos or birthmarks may be unique to you and
26 | enable your re-identification. So even though your name is kept separate from your
27 | coded study data, it is possible that someone could still figure out your identity.
28 | To reduce this risk we recommend photographing moles at close range (6 inches from
29 | skin surface) to minimize capture of secondary identifiable skin features. Further,
30 | we will attempt to review and remove from the study dataset all photos that we
31 | consider identifiable or inappropriate for broad sharing with the research
32 | community.
33 |
34 | The risk to privacy and confidentiality should be considered before participating in
35 | the study.
36 |
37 |
22 | A few years ago, I met and married a woman who means everything to me. She also has 23 | every risk factor for melanoma, an aggressive and deadly cancer that can result from 24 | changes in your moles. 25 |
26 | 27 |28 | The earlier you detect melanoma, the better the outcome. And while my wife regularly 29 | goes to a dermatologist to check her moles, I wanted her to have a tool to map and 30 | measure them on her own. 31 |
32 | 33 |34 | During my PhD, I studied melanoma biology in the lab and by night worked to create 35 | the 36 | app that you have in your hand now. In partnership with OHSU and Sage Bionetworks, 37 | this 38 | app can not only help you track your own moles, but now allows you to contribute 39 | your 40 | data to a research effort that aims to better understand melanoma risk. I hope Mole 41 | Mapper makes being vigilant about your health a bit more enjoyable. 42 |
43 | 44 |45 | Happy Mapping, 46 | 47 | Dan E. Webster 48 |
49 | 50 |List of validation messages, generally contains error messages. Since a single upload 71 | * file may fail validation in multiple ways, Bridge server will attempt to return all messages 72 | * to the user. For example, the upload file might be unencrypted, uncompressed, and it might 73 | * not fit any of the expected schemas for the study.
This field is always non-null, 74 | * but it may be empty. The list is immutable and contains non-null, non-empty strings.
75 | * 76 | * @return messageList 77 | */ 78 | public List